Team Avery

A Penny of Hope in Every Gallon

Wilcox Energy’s Propane Division has teamed up with Team Avery to raise money & awareness for CDKL5.

Meet Avery Rose Leopoldino.  Avery is 4 years old, she lives in Old Saybrook, and she suffers from a rare genetic mutation called CDKL5.  Wilcox Energy’s Propane Division is proud to announce our  partnership with Team Avery to raise funds and awareness for this devastating disease. Wilcox Energy will donate  a penny for every gallon of propane we sell.   100% off all donations fund research for CDKL5. Whether you use propane or not, you can help us fight this horrible disease.

To make a donation to Team Avery, and CDKL5, please mail your donation:  Team Avery c/o Wilcox Energy, PO Box 687, Westbrook, CT  06498.  If you have any questions or want more information about Wilcox Propane’s Team Avery Campaign, please  email Julie Valvo:  jvalvo@wilcox-energy.com.

When Avery was born on April 09, 2008,  she seemed just like any other healthy baby girl.  Her family soon learned, however, that Avery was born with a very rare genetic mutation called CDKL5.   There is currently very little knowledge and funding in regard to understanding her disease and improving her quality of life. Avery suffers from daily seizures. She is profoundly impaired in all areas of her cognitive and motor development. She may never learn to walk or talk, and has potential for some serious gastrointestinal problems as well. Avery also suffers from a cortical visual impairment.  Avery requires 24/7 supervision in her daily life as her seizures can happen any time throughout her day.

“Team Avery” has rallied together to provide a sense of hope for a cure. The surrounding communities of Old Saybrook, Westbrook, Bill’s Seafood, Haddam, Killingworth and Clinton have been so very kind, compassionate and generous with their support in helping to raise both awareness and funding for CDKL5 research. Her father Mark says, “Avery is the light in our eyes that keeps us hoping and praying that someday her quality of life will be improved as better understanding of the CDKL5 protein and its function in the brain is embraced.”

Avery has less than 400 friends around the world currently diagnosed and this disease predominately affects little girls because it is on the X chromosome.  Please join Wilcox Energy in our efforts to raise both awareness and funding for Team Avery & all the children who are suffering from this disease.   Hope. Love. Cure.…Road to a Million!!!   Go to www.CDKL5.com if you would like to learn more.